I'm so sorry I have this. I can't stand the thought of how much worse this is going to get. I can't stand the thought of looking at you someday, and this face I love, and not knowing who you are."She traced the outline of his jaw and chin and the creases of his sorely out of practice laugh lines with her hands. She wiped the sweat from his forehead and the tears from his eyes. "I can barely breathe when I think about it. But we have to think about it. I don't know how much longer I have to know you. We need to talk about what's going to happen."He tipped his glass back, swallowed until there was nothing left, and then sucked a little more from the ice. Then he looked at her with a scared and profound sorrow in his eyes that she'd never seen there before."I don't know if I can.

Pulling through is what people do around here. There is a kind of bravery in their lives that isn’t bravery at all. It is automatic, unflinching, a mix of man and machine, consuming and unquestionable obligation meeting illness move for move in a giant even-steven game of chess – an unending round of something that looks like shadowboxing, though between love and death, which is the shadow? “Everyone admires us for our courage,” says one man. “They have no idea what they’re talking about.”“Courage requires options,” the man adds.“There are options,” says a woman with a thick suede headband. “You could give up. You could fall apart.”“No you can’t. Nobody does. I’ve never seen it,” says the man. “Well, not really fall apart.

One of the most common platitudes we heard was that “words failed.” But words were not failing us at all. It was not true that there was no way to describe our experience. We had plenty of language to talk to each other about the horror of what was happening, and talk we did. If there was a communication problem it was that there were too many words; they were far too heavy and too specific to be inflicted upon others. If something was failing it was the functionality of routine, platitudinous language—the comforting clichés were now inapplicable and perfectly useless. We instinctively protected other people from the knowledge we possessed; we let them think that words failed, because we knew they didn’t want to be familiar with the vocabulary we used daily. We were sure they didn’t want to know what we did; we didn’t want to know it either.

In the spring of 2009, I was the 217th person ever to be diagnosed with anti-NMDA-receptor autoimmune encephalitis. Just a year later, that figure had doubled. Now the number is in the thousands. Yet Dr. Bailey, considered one of the best neurologists in the country, had never heard of it. When we live in a time when the rate of misdiagnoses has shown no improvement since the 1930s, the lesson here is that it’s important to always get a second opinion.While he may be an excellent doctor in many respects, Dr. Bailey is also, in some ways, a perfect example of what is wrong with medicine. I was just a number to him (and if he saw thirty-five patients a day, as he told me, that means I was one of a very large number). He is a by-product of a defective system that forces neurologists to spend five minutes with X number of patients a day to maintain their bottom line. It’s a bad system. Dr. Bailey is not the exception to the rule. He is the rule.

In the museums we used to visit on family vacations when I was a kid, I used to love those rooms which displayed collections of minerals in a kind of closet or chamber which would, at the push of a button, darken. Then ultraviolet lights would begin to glow and the minerals would seem to come alive, new colors, new possibilities, and architectures revealed. Plain stones became fantastic, “futuristic…” Of course there wasn’t any black light in the center of the earth, in the caves where they were quarried; how strange that these stones should have to be brought here, bathed with this unnatural light in order for their transcendent characters to emerge. Irradiation revealed a secret aspect of the world.Imagine illness as this light; demanding, torturous, punitive, it nonetheless reveals more of what things are. A certain glow of being appears. I think this is what is meant when we speculate that death is what makes love possible.

ولأن الإنسان منذ طفولته يرى والدَيْه في صورة الأقوياء القادرين على مواجهة مصاعب الحياة، فإن رؤية الضعف الذي يستنزفهما بالتدريج تكون أصعب من رؤية ذلك يحدث للآخرين

My sister Emily first declined. The details of her illness are deep-branded in my memory, but to dwell on them, either in thought or narrative, is not in my power. Never in all her life had she lingered over any task that lay before her, and she did not linger now. She sank rapidly. She made haste to leave us. Yet, while physically she perished, mentally, she grew stronger than we had yet known her. Day by day, when I saw with what a front she met suffering, I looked on her with anguish of wonder and love. I have seen nothing like it; but, indeed, I have never seen her parallel in anything. Stronger than a man, simpler than a child, her nature stood alone. The awful point was, that, while full of ruth for others, on herself she had no pity; the spirit inexorable to the flesh; from the trembling hand, the unnerved limbs, the faded eyes, the same service exacted as they had rendered in health. To stand by and witness this, and not dare to remonstrate, was pain no words can render.

...the story of the young woman whose death I witnessed in a concentration camp. It is a simple story. There is little to tell and it may sound as if I had invented it; but to me it seems like a poem. This young woman knew that she would die in the next few days. But when I talked to her she was cheerful in spite of this knowledge. "I am grateful that fate has hit me so hard," she told me. "In my former life I was spoiled and did not take spiritual accomplishments seriously." Pointing through the window of the hut, she said, "This tree here is the only friend I have in my loneliness." Through that window she could see just one branch of a chestnut tree, and on the branch were two blossoms. "I often talk to this tree," she said to me. I was startled and didn't quite know how to take her words. Was she delirious? Did she have occasional hallucinations? Anxiously I asked her if the tree replied. "Yes." What did it say to her? She answered, "It said to me, 'I am here-I am here-I am life, eternal life.

Sensitive people are the most genuine and honest people you will ever meet. There is nothing they won’t tell you about themselves if they trust your kindness. However, the moment you betray them, reject them or devalue them, they become the worse type of person. Unfortunately, they end up hurting themselves in the long run. They don’t want to hurt other people. It is against their very nature. They want to make amends and undo the wrong they did. Their life is a wave of highs and lows. They live with guilt and constant pain over unresolved situations and misunderstandings. They are tortured souls that are not able to live with hatred or being hated. This type of person needs the most love anyone can give them because their soul has been constantly bruised by others. However, despite the tragedy of what they have to go through in life, they remain the most compassionate people worth knowing, and the ones that often become activists for the broken hearted, forgotten and the misunderstood. They are angels with broken wings that only fly when loved.

One of my biggest problems in dealing with the breakdown of my body is that I keep looking in the wrong direction. I look to the past and the capabilities I once had, instead of looking to the future and what I will someday become in the presence and by the grace of God. Perhaps that is the strongest temptation for you too. Our culture reinforces that mistake by its refusal to talk about heaven, as if it were an old-fashioned and outdated notion. We also intensify the problem by craving present health (as limited as it can be) more than we desire God.A friend once said to me. "This is so hard getting old—there are so many things we can‘t do any more. I guess the Lord wants to teach us something." Indeed, our bodies will never be what they previously were, and we find that difficult because we miss our former activities. But God wants to teach us to hunger for Him, our greatest treasure. Instead of rejecting the notion of heaven, we genuinely ache in our deepest self to fill that concept with a larger landscape of the Joy of basking in God‘s presence.

For five years, I have been sick and I have been trying to will myself to be better. To think harder about being better, to improve more. To become a better breather, reactor, meditator, hoping that if I just try hard enough, the symptoms will go away and I’ll feel like myself again, like a self I remember as if out of a rearview mirror except with this one, the objects are smaller than they appear. I have tried to force myself to be more clearheaded, energetic, grounded. Tried yoga, acupuncture, cognitive behavioral therapy, talk therapy, and long walks in the woods. And every few months, when I finally felt I’d reached a zenith of my abilities with yoga, CBT, or talk therapy, I would give it another shot: go to another doctor, a Western doctor, one with an M.D. and a white coat, and I would tell him or her my symptoms (for the gender of the doctor does not matter only, it would seem, my gender), and hope that once again, the doctor would pay attention, would take my case, would try to help me so that I didn’t have to so deeply and fervently try to help myself.

I don’t understand hospital chaplains that try to rob my patients of their anger. Sometimes anger is a key motivator that gets people to take action. Anger can push a cancer patient to jump out of his hospital bed, walk down to the nurses station and scream, “I am getting the hell out of here!”. There is a misconception that God is simply sweet and passive. Actually, God can be quite cunning, manipulative and relentless with his children. What we consider as negative traits are actually helpful in molding us. He will use a negative emotion if needed to push people to do things that will change them for the better. He will allow people or situations to derail us if there is a chance that those interactions will push us forward. Personally, I don’t want a God that is going to send some church member to my deathbed with a plate of cookies and tell me to have faith. Actually, I rather have a God that screams, “Get the hell off your ass, stop feeling sorry for yourself. Walk down the hall with that Physical Therapist so you can get on with your life!" A little anger in a person can push them to do amazing things.

Save me from hatred, that destructive impulse, the poison that ravages the heart and liver. I must stop wanting to take revenge on other lives, on other minds; I must forget hatred, reject it, refuse to answer it with more hatred. I must rise above it. Help me to renounce this crippling bond, to leave without hindrance this body that no longer looks like one, but like a jumble of deformed bones; direct my eyes to other stones. This darkness suits me: when I look inside myself, I see more clearly the world, even if my feet are still freezing on this damp cement floor. The back of my neck hurts because I cannot stand up straight. No--I feel no pain. I am certain that I feel no pain. I do not feel anything any more. My prayer has been answered. I am not ill. I will never be, here, no matter how I suffer. O my God, I have learned from You that a healthy body teaches us about the beauty of the world. It is the echo of enchantment, produced by life and light. It is light. Light in life. When it is withdrawn from life, isolated and imprisoned in a black hole, it no longer echoes anything, it reflects nothing. Thanks to Your will, I shall never be extinguished.

Illness especially, may be a blessed forerunner of the individual’s conversion. Not only does it prevent him from realizing his desires; it even reduces his capacity for sin, his opportunities for vice. In that enforced detachment from evil, which is a Mercy of God, he has time to search himself, to appraise his life, to interpret it in terms of larger reality. He considers God, and, at that moment, there is a sense of duality, a confronting of personality with Divinity, a comparison of the facts of his life with the ideal from which he fell. The soul is forced to look inside itself, to inquire whether there is more peace in this suffering than in sinning. Once a sick man, in his passivity, begins to ask, “What is the purpose of my life? Why am I here?” the crisis has already begun. Conversion becomes possible the very moment a man ceases to blame God or life and begins to blame himself; by doing so, he becomes able to distinguish between his sinful barnacles and the ship of his soul. A crack has appeared in the armor of his egotism; now the sunlight of God’s grace can pour in. But until that happens, catastrophes can teach us nothing but despair.

Statistics say that a range of mental disorders affects more than one in four Americans in any given year. That means millions of Americans are totally batshit.but having perused the various tests available that they use to determine whether you're manic depressive. OCD, schizo-affective, schizophrenic, or whatever, I'm surprised the number is that low. So I have gone through a bunch of the available tests, and I've taken questions from each of them, and assembled my own psychological evaluation screening which I thought I'd share with you.So, here are some of the things that they ask to determine if you're mentally disordered1. In the last week, have you been feeling irritable?2. In the last week, have you gained a little weight?3. In the last week, have you felt like not talking to people?4. Do you no longer get as much pleasure doing certain things as you used to?5. In the last week, have you felt fatigued?6. Do you think about sex a lot?If you don't say yes to any of these questions either you're lying, or you don't speak English, or you're illiterate, in which case, I have the distinct impression that I may have lost you a few chapters ago.